2024 Lou Gehrig Community Impact Team member Nick Kurtz made MLB history last Friday night, becoming the first rookie ever to hit four home runs in a single game, going a perfect 6-for-6 and tying the MLB single-game record with 19 total bases for the A’s. 🔥⚾ Nick's greatness goes far beyond the stat sheet. During his time at Wake Forest, he was as committed to community service as he was to baseball, volunteering with the North Carolina Epilepsy Alliance, leading Seizure Awareness Day, and taking part in campus-wide traditions like Hit the Bricks and A Climb to Remember, all while earning All-American honors and national recognition on the field. From changing lives off the field to rewriting the record books on it, Nick embodies what it means to live like Lou. 📸: Nick Kurtz's Instagram
Live Like Lou Foundation
Non-profit Organizations
Oxford, Ohio 1,861 followers
Leaving ALS better than we found it.
About us
National nonprofit organization committed to raising awareness of ALS, supporting ALS warriors and their families, and raising funds for emerging ALS science focused on finding treatments or a cure. We do this work in honor of our namesake, Major League Baseball Hall of Famer, and Luckiest Man, Lou Gehrig, and the more than 16,000 people living with this 100% fatal disease each day across North America. Our programs include grants targeted to emerging ALS research programs and researchers, Iron Horse Scholarships for dependents of ALS warriors, one-time or short-term projects in/around the home, grants in support of children in ALS families, and so much more. We are proud partners with Lou Gehrig's fraternity, Phi Delta Theta. For more than half a century, Phi Delts from across the globe have been dedicated to ALS as its philanthropic charity. Their partnership allows us to serve more than 200 ALS families each year through hands-on volunteer work and support of children in ALS families attending Hope Loves Company camps. Our mission is to create and connect communities to stimulate emerging research and uniquely support families affected by Lou Gehrig’s disease. In doing so, we know we'll leave ALS better than we found it.
- Website
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http://xmrrwallet.com/cmx.pwww.livelikelou.org
External link for Live Like Lou Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Oxford, Ohio
- Type
- Nonprofit
- Founded
- 2018
- Specialties
- ALS, Lou Gehrig's disease, ALS Awareness, ALS Research, ALS Family Support, Scholarships, and Grants
Locations
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Primary
Get directions
2 South Campus Avenue
Oxford, Ohio 45056, US
Employees at Live Like Lou Foundation
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Jeremy Smith
Senior Stewardship and Development Director at Live Like Lou Foundation
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Wendy Faust, CFRE
Executive Director of the Live Like Lou Foundation, leaving ALS better than we found it
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Evangelos Kiskinis
Associate Professor, Depart of Neurology at Northwestern University, Feinberg School of Medicine
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Laura Peterson
Program and Engagement Director at Live Like Lou Foundation
Updates
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"We would use these funds to help pay for an in-home health aide. These funds would help tremendously for both myself and my husband," said Tavares Speer. Tavares was diagnosed with ALS in 2018. Today, he and his husband are navigating the realities of this disease together, with his husband serving as both partner and primary caregiver. A Live Like Lou Quality-of-Life Grant would help them afford an in-home health aide, easing the burden and bringing much-needed support into their home. Your gift can make an immediate difference for ALS families like the Speers. 💙 Give today: livelikelou.org/give
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Trust matters, and we’re proud to have earned the highest possible recognitions for transparency and accountability. ✨ Live Like Lou holds the Candid Platinum Seal of Transparency and a 4-star rating from Charity Navigator, placing us among the most trusted nonprofits in the country. These honors mean we go above and beyond to share details about our impact, financial health, leadership demographics, goals, and strategies, showing exactly how we serve ALS families and invest in research. When you donate to Live Like Lou, you can be confident your gift is managed with care, purpose, and integrity. 💙
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"An accessible vehicle will help restore Micah's ability to engage with the world beyond our home," said Micah's mother, Denise Johnson. At just 19, Micah was diagnosed with ALS in 2024. Her mom, Denise, is doing everything she can to secure a wheelchair-accessible van and care for Micah and her two sisters. This year alone, more than 200 ALS families like Micah’s are waiting for help, and we can only fund a fraction of the $750,000 in Quality-of-Life Grant requests we received. Your support makes it possible for the Live Like Lou Foundation to offer Quality-of-Life Grants of up to $2,500 to families like Micah’s, covering: 🏡Home Improvements 🩺Respite care expenses 🏉Extracurriculars for children 💙Mobility enhancements ✨And more Give today: livelikelou.org/give
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"Lou Gehrig had a lot to live for, and so do I. Your support makes a world of difference in the lives of people like me navigating the challenges of ALS,” said Sara Bennett, diagnosed with ALS in 2023. Please give today to support Live Like Lou’s Quality-of-Life grant program at livelikelou.org/give. This program provides up to $2,500 to individuals with ALS and their families to help cover: 💙 Home modifications (like ramps & accessible bathrooms) 💙 Assistive technology & essential services 💙 Respite care for caregivers 💙 Support for children in ALS families 💙 Contributions toward accessible vehicles and more.
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In just one week, Brian Dunn has already raised an incredible $19,221 out of his ambitious $31,000 goal for Lou’s Crew! 💙 To mark his 70th trip around the sun, Brian is taking on an Olympic-distance triathlon, swimming 1.5 km, biking 40 km, and running 10 km, totaling 51.5 km (about 31 miles) to honor those affected by ALS. Brian hits the starting line on September 7, and until then, we’re cheering him on every step of the way! Stay tuned for more ways to join Lou’s Crew. 🥳
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For the third year, Live Like Lou is grateful to receive support from Groove Subaru through Subaru’s Subaru of America Share the Love campaign! 💙 Thanks to this grant, we’ve: 🎓 Awarded two Onward Award scholarships to students impacted by ALS at Colorado State Universityand Colorado Mesa University. 🔬 Funded a University of Colorado Boulder researcher to attend our 2025 ALS Research Symposium. 🎁 Gifted a custom Colorado Rockies wheelchair to someone living with ALS, thanks to the Permobil Foundation. Big thanks to the Cimbura family for championing our cause year after year, and to @iamalsorg for joining us in celebrating!
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Kelli Szluka, a dedicated Live Like Lou volunteer and co-creator of our signature event, The Lou Workout, was recently recognized by New York State Representative Chris Burdick as a 2025 woman of distinction for Westchester County. Her dedication to the ALS community through #TheLouWorkout and with Live Like Lou was featured among her many volunteer efforts for this recognition. 💙👏 Congratulations and thank you, Kelli, for your commitment to leaving ALS better than you found it! Learn more about The Lou at thelouworkout.com or on Instagram @thelouworkout. 💪
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Closing out this year’s Onward Awards with one final round of incredible students. 💙 These six Onward Award recipients showed the same courage, heart, and perseverance that Lou did, sharing their ALS stories with strength and hope. We're proud to stand beside them as they continue #Onward.
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