AcademyHealth

How Data Opens New Frontiers in Health Care Price Transparency  Big data can help us take a closer look at how health care prices are shared—or not. Dr. Christopher Whaley, Associate Professor at Brown University, and Todd Gottula, Co-founder and President of Clarify Health Solutions, discuss why price transparency matters and how better data can help show big differences in the cost of care, depending on the procedure, provider, insurer, or location.  This interview is the second in a five-part series that reflects on what it takes to democratize data—and why it matters—through lessons learned in the Health Data for Action program, an initiative of RWJF managed by AcademyHealth.  Check out the full conversation, moderated by Kevin McAvey, Managing Director, Manatt Health here: https://xmrrwallet.com/cmx.plnkd.in/ezjkW-9c #HealthEquity #DataForGood #PriceTransparency #PublicHealth #HealthCareData

AI in health care must be accountable and community-centered. Hear from experts developing ethical AI models rooted in transparency and patient trust at the 2025 Health Datapalooza session “Community Centered Ethical AI Frameworks”.  Rasu Shrestha MD MBA of Advocate Health will moderate this #hdpalooza session, featuring speakers Grace Cordovano, PhD, BCPA, Roli Dwivedi, MD, FAAFP,DABFM, and Najma Abdullahi. See session details here: https://xmrrwallet.com/cmx.plnkd.in/eDz5DYJW Register to join the conversation: https://xmrrwallet.com/cmx.plnkd.in/evp7aFN8 

The latest AcademyHealth Situation Report offers updates on the Senate’s rejection of major public health funding cuts, legal challenges to gender-affirming care restrictions, concerns over vaccine policy, and a historic $2.5B investment in women’s health, positives for evidence-based research amid ongoing challenges.   Read more to stay informed to protect access to care and science-driven health policy: https://xmrrwallet.com/cmx.plnkd.in/e-ua6Whr  

In a new op-ed, AcademyHealth President and CEO Dr. Aaron E. Carroll explores how science communication missteps have contributed to growing skepticism and what the path forward looks like. With federal research funding under pressure and trust in scientific institutions declining, Carroll calls for a better model of public engagement. “Science is evidence, not instruction,” he writes. Sound policy depends not only on strong research but also on clear, transparent, and empathetic communication about what evidence can and cannot tell us.  Read the full op-ed: https://xmrrwallet.com/cmx.pwapo.st/4orhd4Y 

Virtual care is here to stay — but how do we measure its true impact? Join us for a discussion moderated by Sarah Linke, PhD, MPH and featuring Christopher Botts of American Medical Association, Dori Steinberg of Modern Health, and Jared Augenstein of Manatt Health to explore frameworks for answering this question and evaluating the value of virtual health.  Learn more about the #hdpalooza session “Bridging Gaps in Virtual Health: Standardizing Value Through Unified Evaluation:" https://xmrrwallet.com/cmx.plnkd.in/eaKegwK9   and register here: https://xmrrwallet.com/cmx.plnkd.in/evp7aFN8

Data has the power to drive change—but only if people can access it.  Research relies on high-quality data to uncover health inequities, direct resources where they're needed most, and track real progress toward a future where health is no longer a privilege, but a right. But too often, data access costs too much or takes too long to make it useful.    We’re launching a five-part interview series that reflects on what it takes to democratize data—and why it matters—through lessons learned in the Health Data for Action program, an initiative of RWJF managed by AcademyHealth.     In the first installment, learn from Katherine Hempstead, senior policy officer at RWJF and Megan Collado, senior director, AcademyHealth on the impact on research and policy, the cost of data access, the importance of data brokers, and what’s needed in the future. This series is moderated by Kevin McAvey, managing director, Manatt Health.  Read more: https://xmrrwallet.com/cmx.plnkd.in/eEeZB897   #HealthEquity #DataForGood #OpenData #PublicHealth #SocialImpact #ResearchMatters 

What happens when we lose access to public health data?  In a new podcast episode of Health Affairs This Week, AcademyHealth CEO Aaron E. Carroll joins Jeff Byers to discuss the real-world challenges of data suppression, especially in the fields of maternal health, youth mental health, and chronic disease.   Learn more about why access to public health data is essential and what AcademyHealth is doing to restore it: https://xmrrwallet.com/cmx.plnkd.in/eg33iUXa  Text AcademyHealth to 44-321 to support us in restoring access to critical health data.

The latest Situation Report covers continued efforts to protect the U.S. Preventive Services Task Force (USPSTF) including a new resolution introduced by Congress following AcademyHealth’s advocacy efforts. The White House and CMS also announced an initiative to modernize the digital health ecosystem, securing pledges from over 60 leading companies to attempt to make data more accessible. AcademyHealth also remains committed to restoring public health data. Read more: https://xmrrwallet.com/cmx.plnkd.in/eiQSzQDy

The 2025 Health Datapalooza has informative sessions and practical resources that you don’t want to miss out on. Join us for “Mosaic in Motion: Exploring New Tools for Turning Data into Action” to learn how new data tools are evolving to empower real-time decision-making in policymaking and care delivery. This session features a preview of how AI insights can shape the future of health policy.  Moderated by Zia Agha of West Health and featuring Jon Zifferblatt, MD/MPH of West Health, Anna Kaltenboeck of Verdant Research, and Robert Saunders of Duke-Margolis Institute for Health Policy.  See session details here: https://xmrrwallet.com/cmx.plnkd.in/eD-4b6g6  Register here: https://xmrrwallet.com/cmx.plnkd.in/evp7aFN8 

Aaron E. Carroll joined Jeff Byers on the Health Affairs This Week Podcast to talk about what’s lost when public data is restricted or removed. Researchers, policymakers, and advocates rely on accessible data to track progress, evaluate interventions, and address inequities.     Listen to this week’s episode to learn more about what’s at risk, Academy Health’s lawsuit to restore data access, and how you can help: https://xmrrwallet.com/cmx.plnkd.in/enUGycyV   If you are a researcher or practitioner whose work has been disrupted by missing or restricted health data, you also have the opportunity to share your story with Academy Health here:  here: https://xmrrwallet.com/cmx.plnkd.in/eSpYCUzu